Well I stared back at the UW for PT this week. I really like my PT, Whitney, she is great, and she has a ton of experience with SCI. But for the most part PT seems like a waste of time. Because of the new year, that means new insurance available to use on PT, so I'm going. Trying to be as active as I possibly can be. But often the advice I'm given just isn't realistic.
For example, I always pick Anthony up with my right arm, and they are recommending I start using my left arm as my right is obviously stronger. I do not feel comfortable picking up a 22 lb baby with my left arm; however I completely understand the recommendation, but I think the safety of the baby supercedes that recommendation. I am not going to risk dropping A so that my left arm can get stronger. Thanks for the idea though.
Of course we also discussed my use (or lack thereof) of prescription meds. I am currently on no prescriptions and I'd like to keep it that way. Most people with similar injuries are on several - for pain, spasticity, etc. My legs are highly spastic, which basically means they do what they want when they want. I can't control them right now and it is super annoying. If I kick you I'm sorry - I swear it wasn't on purpose...;) In fact when I met with Dr. Reyes right before Christmas she said "it's really hard to do a physical exam when your legs are so spastic." To which I replied I was not interested in any medication. Jared later mentioned that next time I go in I should "let that doctor know that it's really hard to walk when I'm in a wheelchair" (I edited out the explitives there...). It's amazing to me how I am just expected to accept the fact that I'll be in a wheelchair for the rest of my life and not hope* for anything more. So my conversation with Whitney ended in her telling me that in fact it really is better if I can go all natural and not be on any meds - really? Why didn't I think of that?
Though it may not sound like it from the last paragraph I am grateful for all of the fantastic doctors, therapists and trainers that I am working with. I feel like I am getting the best care available right now - it's just every once in awhile there are funny moments that arise.
Next week I'll start working with my PT with my new RGOs - I'll have to post pics later because those are certainly quite a sight to see! Talk about a lot of frustration and hard work....
*Hope: Not in the sense of optimistic outlook or wishful thinking without any foundation, but in the sense of confident expectation based on solid certainty.