Well I've decided to give the anti-spasticity meds (Baclofen) a shot. It was shipped yesterday so I'll start on it early next week. My spasms are really getting to the point where they are interfering with my daily activities and just driving me bonkers. It's harder to sleep at night as my legs are constantly moving. The spasticity really affects things like transferring in and out of the wheelchair and getting dressed. Hopefully I'm able to tolerate the baclofen and it will help enough before reaching the maximum dosage. I'm starting at 10mg/day and then my doctor has given me the go ahead to up it every couple days until I hit 80 mg/day. I'm hoping a smaller dose will be effective, but my spasticity is quite severe compared to others I know with SCI.
It's not being in a wheelchair that's the hardest part of all this - the other crap that comes along with it is definitely more of a pain than my legs not working. The main side effect I'm worried about is severe drowsiness. My doctor said that only lasts for a month or two and then dissipates, but I hope it's something I can tolerate while waiting for that side effect to subside. I'm on one other med (I'll spare you the details) that also causes drowsiness, so the two together should be interesting. I might be napping a lot.
3 comments:
What do I know ... but I say good for you! Why not make yourself comfortable? If you hate the medicine, then you just stop taking it, right? L, LL.
Today or tomorrow we are by your side- we are hear to help- support- and love you. lots of love- Jody
I hope it really helps, Beka!
Post a Comment